But the angel reassured them.
“Don’t be afraid!” he said.
“I bring you good news that will bring great joy to all people.
~Luke 2:10 (NLT)~
Jason’s Story: Boston Results
We are now home and finally get to relax and spend time with family. Our appointment went really well in Boston. We are making a few changes to my diet. We are going to spread my meals out so that I get to eat 5 times a day. Hopefully that will help me eat my food. We are also getting some meals planned that have baby food vegetables and fruits. By doing this we hope to get me to eat some more fruits and vegetables. Right now I’m only eating apple sauce. We still haven’t noticed any change in my seizures. The neurologist want to give it another 2-3 months. If we don’t see any change we will stop the diet. I have been on it for about 2 month already. They said the diet just doesn’t work on some people. We are not giving up yet though. We will continue to try and pray that we can get these seizures down. I did go a little over a week without seizures at night but they came back a couple of nights ago. We got some more test results that they did back in October. The genetic test that we did came back normal. Now we are just waiting on the CDKL 5 genetic test to come back. We got the official results of my 3T MRI. While we were there they said everything looked normal. Well when the neurologist got together and studied it they found a POSSIBLE malformation in the left post lobe of my brain. They are not sure what this is because I’m so little. They want to repeat the 3T MRI sometime in April once my brain has grown some more. They are hoping it will be clearer then and then they will be able to determine what the are seeing. They also want me to go see an orthopedic for my feet. My toes turn down a little and they want us to get it checked out. While I was in Boston they did more blood work. My blood work showed that my CO2 level is low so they started me on PolyCitra to help regulate my CO2. They said this is common when babies are on the ketogenic diet and take topamax. My blood sugar was also a little low but nothing to be concerned about. So, so far all this diet has done is cause more problems. All you keto fans don’t get mad at me. I know you have to give it time but its been horrible for us. We are working on making it better. I am still on the new medicine Vimpat. It has not helped yet but my neurologist still want to give it some more time. So it looks like we have another failed medication. Here is the list of failed medicines:
1. klonopin
2. prednisolone
3. ACTH (2 rounds)- didn’t help seizures but helped EEG
4. keppra
5. topamax
6. trileptal
7. clobazam
8. vimpat
9. banzel
All of these helped at first and then stopped. I’m still on keppra, topamax, banzel, and vimpat. We are slowly getting rid of the ones that aren’t working. So I think I have updated you on everything. Please continue to pray for me. I keep thinking that we didn’t get our miracle in 2010 but the more I thought about it, I think we really did. I went from not being able to hold my head up to sitting up and being just as alert as a normal 15 month old. So no we didn’t get our seizure miracle but we came farther than anyone expected. I still believe we will get our seizure miracle one day. I’m leaving you with a picture of me trying to catch the snow at the airport in Boston. It was absolutely beautiful. Everyone have a great Christmas.
Continue your prayers for Ashlyn Neal and her family as they try to rest her brain and overcome the concussion.
Pray for Mr. Earl Dees. Is is in CCU at OLOL after having surgery yesterday.
| Billi Jo Eyer (May 2, 1982 – December 23, 2010) |
Billi Jo Eyer was born May 2, 1982 and passed away at 9:13 a.m., Thursday, December 23, 2010 at her residence. She was 28, a native of Independence and a resident of Amite.
Billi Jo is survived by 3 sons, Gregory Rowell, Albany, Bryce and Gaige Eyer both of Amite; mother, Connie Bennett and husband “TJ”, Amite; father, Billy Eyer, Roseland; sister, Suzanna Calhoun and husband Matt, Kentwood; half sister, Dawn Eyer, Baltimore, Maryland; step-sister, Marilyn Gayle Wright and husband, Chris, Loranger; step-brother, Tommy Bennett and wife Angela, Franklinton; grandmothers, Francis Hughes, Roseland and Dorothy Eggers, Roseland; numerous aunts, uncles and extended family.
Preceded in death by a half sister, Danielle Eyer; step-brother, Jason Bennett and grandfather, Chester Hughes.
Visitation at McKneely & Vaughn Funeral Home, Amite, on Sunday, December 26, 2010 from 6:00 p.m. until 9:00 p.m. and on Monday, December 27, 2010 from 8:00 a.m. until Celebration of Life Services at 1:00 p.m. in the funeral home Chapel with Rev. David Cutrer officiating. Interment in Killian Chapel Cemetery, Amite, LA.
An on-line Guestbook is available at http://www.mckneelyvaughnfh.com.
Bobby Clyde Cheek
(May 7, 1938 – December 23, 2010)
A resident of Pine Grove, he died on Thursday, December 23, 2010 at Hood Memorial Hospital in Amite. He was born May 7, 1938 in Midnight, MS and was 72 years of age. He worked for Rebel Sand and Gravel for 32 years. He is survived by, wife of 50 years, Georgia Mae Baker Cheek, Pine Grove; 3 daughters, Elizabeth “Ann” Cheek and her fiance’, Melvin Roe, Watson, Margaret Cheek Rutland and her husband, Robert W. Rutland, Pine Grove, and Barbara “Boo” Cheek Rutland and her husband, Roger Rutland, Pine Grove; 4 grandchildren, Kris Rutland, Watson, Samantha Ellzey Thompson, Fayetteville, NC, Blair Oliver Davis, Watson, Ashley Rutland, Baton Rouge; 3 great-grandchildren, Breeanna Thompson, Fayetteville, NC, Hannah Davis, Watson, and Konner Rutland, Watson; brother, Jimmy Cheeks and his wife, Cara Faye Cheeks, Denham Springs; numerous nieces and nephews including a special niece, Georgia Mae Papizan, Watson. He was preceded in death by his parents, Ernest and Maudie Mae Sheffield Cheeks; sister, Marie Bankston; brother, Ernest Cheeks, Jr. Visitation at McKneely Funeral Home, Amite, from 9 a.m. until religious services at 2 p.m. on Monday, December 27, 2010. Services conducted by Rev. Danny Carter. Interment Pleasant Hill Cemetery, Pine Grove.
Thinking inside the box
Lots of kids are homeschooled. Joseph Daniels is, too. But his schoolroom is a little different. Joseph goes to school in the very large box that his family used to ship their belongings to their new home in Kenya. With help from the Lottie Moon Christmas Offering, Joseph has a $20 chalkboard, a $25 desk and chair and $30 worth of art supplies.
For three or four hours every weekday, Joseph is taught by his mom. Her name is Sandra. She teaches Joseph how to add and subtract, and how to write. Sandra also helps him learn about the world outside his schoolroom box. With her, Joseph has learned about several countries and she’s taken him on fun field trips.
At an animal orphanage, Joseph saw baby elephants and a baby rhinoceros. Not far from his home, Joseph can see giraffes, warthogs and zebras. At night, he can hear the “whop,” “whop” sound the zebras make.
“That is the beauty of homeschooling,” Sandra says. “Everything we do teaches him something new. Like watching a cow eat grass, Joseph knows how the stomach works to process the food.”
Joseph’s dad helps him learn, too. One night they went outside to see the stars that make up the “Big Dipper.” During a day trip, Joseph helped his dad share vitamins and Bible stories with the Samburu people who live in Kenya.
International Missiona Board
Lottie Moon Christmas Offering
Have a great day!
Anna Lee
The Prayer Link 