Saturday Update on Aaron Hill

Posted 1:13 P.M.

Aaron had a quiet night and has been doing good this morning. The doctors had to go in his chest to clean out a blood clot that had settled there. They say it is fairly common when a child is on ECMO. He tolerated the procedure well. They have done an EKG on him and have told us his heart function is looking good. For this we are so thankful. They MIGHT look at trying to wean him from the machine tomorrow. Please pray that God will continue to strengthen Aaron’s heart and the rest of his body so that he can come off the bypass machine. It is a very scary sight for his parents and the first big step in his recovery from the second operation.

With my surge of adrenaline and emotions, I failed to mention in last night’s post that Dr. Spray was able to close both of the holes in Aaron’s heart. One was the result of a torn stitch near where his VSD was and the other was up higher. Both of these repairs were very difficult, but successful.

I have to confess that I struggled yesterday with disappointment and anger. Not anger at God, really, but anger that Aaron has had such a hard time. Although there is much sadness in this place, we also often seen babies and children come in for heart repair and leave within a few days. We rejoice for those families, but are secretly jealous of them. We want our Aaron to know health, a life outside the hospital, to be free of pain and to be one of the families walking out with a smile. We continue to pray for patience if this is God’s will for Aaron.

Please continue praying for our little one.

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